SURGERY DAY..........

I have been horrible about keeping up on this blog lately but today is as good of a day as any to try to get back to it.  We are at CMH and Coop is currently in surgery.  They are attempting to put in a Melody Valve.  This is a valve that would fix so many of our problems and would sustain Coop for some time.  The only problem is that he is small.  We did find out today that around the world they have inserted the Melody Valve in patients as small as Coop, but here at CMH Coop would be the smallest by far.  They brought in a tech from Medronic, the company that develops the Melody Valve, to consult and help them why they are in there.  Coop's open heart surgeon is standing by but unless things go wrong he will not be needed.  The Melody Valve is amazing.  It is FDA approved but due to the limited use of it, there is different protocal as far as consent goes.  It is considered Humanitarian Use which just means there have not been enough of them done for FDA to sign off on them as a recommended procedure.  Anyway I cannot tell you how much I hope they are able to insert it.  They are doing other things as well why they are in there.  They will expand his stints and do a full evaluation.  We discussed his extremely low heart rate but Dr. Kaine is not overly concerned with that because Coop seems unaffected by it.  He said he has no explanation and finds it asymatic but as always, it's Coop being Coop.  Dr. Kaine is thrilled with Cooper and acknowledges that with Coop's rough start it is amazing to see where he is now.

Coop was crazy nervous/scared.  I really thought he was going to cry but of course he was too tough for that.  I wish I were as tough as he is!  When the versed kicked in he became silly as always.  His SAT monitor was beeping and he started beeping with it.  When I joined in the silliness he began giggling.  I love that giggle.  I did not want them to come and say it was time but of course they did.  The wheeled him off as they talked about the animals lining the halls.  He was fine, Terry and I held it together pretty well.  We now are waiting the first update to tell us he is under and they are on their way.

I am always blown away by the love we receive during these times.  Coop has been flooded with prayers, thoughtts, gifts and more love than you can imagine.  To everyone, we thank you!  There is never any way for us to express how thankful we are for all of you.  We are where we are today because we have an amazing support system and so much love!!!  Thank you thank you thank you!!!